The 2025 RareVoice Awards honor exceptional advocates who champion and elevate the rare disease patient voice in state and federal policy.
These awards recognize individuals and organizations whose advocacy efforts have driven meaningful policy impact on behalf of the rare disease community. Awardees are selected by a committee from nominations submitted by patients, caregivers, advocates, and organizations across the rare disease ecosystem.
Check out the video below to meet the awardees, and register to attend Rare Disease Week on Capitol Hill 2026 to celebrate these advocates here.
Want to meet the 2025 RareVoice Awardees?
Join us in Washington, D.C. this February 24-26 to hear the amazing stories of these individuals, in-person.
Awardees will take part in a RareVoice Success Panel presentation on Tuesday, February 24 as part of Rare Disease Week on Capitol Hill events. For more information and to register, click the button below.
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