Welcome Advocates, to the 14th annual Rare Disease Week on Capitol Hill!
We are so honored that you are sharing your time so generously, using your vacation, and spending your own funds to travel to join us in Washington, DC. The EveryLife team is in awe of your courage, dedication and passion for rare disease advocacy. We are grateful to have you here with us, and this year, your stories and influence as rare disease ambassadors matter more than ever.
On behalf of the EveryLife Foundation for Rare Diseases Team and our volunteers and partners, we wish you an exceptional week in Washington, DC.
