Rare Disease Week on Capitol Hill
February 24 - 26, 2025
Rare Disease Week on Capitol Hill 2025 Agenda
Monday, February 24th
Tuesday, February 25th
Legislative Conference (9:00 am – 5:00 pm) (See Full Agenda Here)
Check-In & Breakfast (8:00 – 9:00 am)
Location: Ronald Reagan Building and International Trade Center
1300 Pennsylvania Ave, NW, Concourse Level, Atrium, Washington DC, 20005
Event description
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Young Adult Rare Representatives (YARR) Meetup (5:00 pm – 6:30 pm) – Advocates 16-30 years old only
Location: Ronald Reagan Building and International Trade Center
1300 Pennsylvania Ave, NW, Concourse Level, Ballroom B, Washington DC, 20005
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Note: the entrance closest to the Atrium on the Concourse Level is on 14th St NW. Use 1300 Pennsylvania Ave NW, Washington DC, 20004 as your destination if you are using a rideshare app like Uber or Lyft. For more information on the building entrances and directions to the Atrium, click here.
Wednesday, February 26th
Rare Disease Congressional Caucus Briefing (9:00 – 10:00 am)
Check-In & Breakfast (8:30 – 9:00 am)Location: Top of the Hill Banquet & Conference Center
1 Constitution Ave NE, Ballroom, Washington DC, 20002
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Meetings with Members of Congress
Location: Capitol Hill, Washington DC, 20004
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Group Photo on Capitol Steps (4:30 pm)
Location: Capitol Hill, Washington DC, 20004
The Senate Side facing the Supreme Court
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Rare Artist Reception (5:00 – 7:00 pm)
Location: Top of the Hill Banquet & Conference Center
1 Constitution Ave NE, Ballroom, Washington DC, 20002
